The EB Community relies on a vast network of families, medical professionals and researchers to share their knowledge about daily wound care, research updates and educational information. The following are a few resources you can use to learn more about EB:
McKesson Patient Care Solutions (MPCS) provides the EB Nurse website (www.ebnurse.org) as a source of information for the EB community
The Official Patient’s Sourcebook on Epidermolysis Bullosa by James N. Parker, MD and Philip M. Parker, PH.D, Editors. Published by Icon Health Publications.
To reach the Southern California Support Group, contact: Gloria_lira@hotmail.com